Amos had another surgery today. This one was to place a catheter in his stomach to drain fluid. His mom said it went well. It was very difficult being far away from him on a surgery day. I found myself falling apart as I sat and listened to Evynn Hollens sing “Fields of Gold.”
We met so many exciting people today. Evie’s concert and meet & greet at her booth went really well. She sings again tomorrow. You are all welcomed to come to Salt Lake to see her show.
We were so happy my sister Missie and her daughter Bailey were there to support her.
Big thanks to both Kirra and Josh Mortensen who each joined her for a couple songs. We also had tons of help from my nephew Emmett Koozer and our good friend Ben Arkell. We couldn’t have done this day without them.
Our feet are tired but it was all worth it. We also had tons of fun and are excited for another day of connections to such good people. Ben reminded me today that it’s all about the relationships you make and keep.
The home care nurse came out again to run his TPN nutrition tonight. I feel like I know a little more how the rest of my family feels being so far away from Amos and helplessly worrying about him until the next update.