I was in the hospital room this morning when the doctor came in. I have felt strongly for a few days that we need to get Amos off the TPN. I asked the doctor directly if a feeding tube would be easier on the liver than the TPN. He said yes. He agreed to change him to the feeding tube and take him off the antibiotics since those are hard on the liver also.
I got on a plane with a little comfort that we would be giving his overworked liver a break tonight.
Phoebe, Evie, Blakely and I arrived in Hollywood and ran into some friends.
We came back to a phone call from Amos’s dad. He had the doctor with him who wanted to talk to me. He said they tried the feeding tube but he was too sensitive to it and they had to take it out. He said the other doctors said there is really nothing they can do for the liver at this point anyway so they decided to put him back on the TPN.
As you can imagine, that didn’t go over well with me. Thankfully he was reasonable and understood my point that if they are giving up hope anyway, there is no reason we shouldn’t go with the hypothesis that his liver is overworked and needs a break rather than the hopeless view that his liver is failing because of the cancer.
He agreed that we have nothing to lose and he also agreed that from now on only people who still have hope in survival for Amos should be making decisions for his care.
I spoke to Amos on the phone to ask him how he felt about all this. He was worried about the increased pain of digesting food but agreed that it needed to be done. My heart is with my best friend right now and I’m grateful for those caring for him while I am away. I love you Amos.
Amos will be off TPN and antibiotics tonight and they will test his liver in the morning to see if there is any sign of improvement.
Please pray with me for a miracle tonight.