My friend Nicole sent me this message today… “We started this morning with a prayer and a fast for Amos and your family. Frankly we have never sat together and done this as a family. My daughter Lacey 8 year old during sacrament started crying. She was saying I’m so hungry. I told her it was good to try and fast but if she needed to she could eat. With more tears she said then Evie’s dad won’t get better!!! It was the sweetest thing. I talked to her about how Heavenly Father appreciated her effort and it’s really the first time she really fasted and it was up to her if she wanted to eat. I said a silent prayer to comfort her and let her accomplish this task because she was so concerned for Evie’s dad. She made it and fasted. Thank you for being such a good example of faith so I can follow your families example and teach my kiddos! I hope you can have some peace today.”
We are thankful for all the people who fasted for Amos today. I know good will come from it and after today, we are desperate for a little good.
While his white blood cell counts improved today, his billiruben got worse and is back up to 9.4.
The draining procedure for the lungs went well yesterday. I was feeling so good last night as they drained one and a half liters from his chest and his oxygen and heart rate numbers started looking much better.
Sadly, the improvement didn’t last and his lungs filled back up overnight.
Our entire stake fasted for Amos today and it was wonderful to be in my ward and feel the love of our friends.
After church the kids got to come see daddy. He hasn’t been very responsive today and that was hard on all of us.
The Johnstone cousins came out to be with us at church and the hospital and helped at home. It’s so great to have family around.
Dad and Tracy and her kids have taken good care of us today and I got to meet Caitlyn’s baby. She is adorable!!
Bishop Elwood came to see how he was today but couldn’t see him because he was doing a scan. They scanned his gall bladder and we are still waiting for results on that.
Amos’s Gilbert High friends came for a minute and so did my nephew Spencer and my sister Christy.
Our friends the Rawls were fun visitors. We appreciate them so much. They brought Amos a cool Super Man lanyard like the Captain America one Jef is wearing. It even lights up. I think we’ll try it out tomorrow.
I was able to be with Amos over night and it was a special time for us. He was very sweet to me despite his pain and discomfort.
He didn’t have any terrible issues until early this morning when they said they were going to give him his pain pills by mouth rather than through the vein as they had done all night. He threw up and may have aspirated. Now his lung issues have become more of a problem than his liver issues.
His billiruben dropped again last night which is a good sign that his liver is making a comeback, but the lung and oxygen issues got him transferred to a new floor and now I just heard that they are transferring him again. Now he will be in the ICU and they will do the lung and abdomen draining procedures there at his bedside around 7pm.
Please pray for his procedures to go well. He is still fighting with everything he’s got. He really wants to pull that oxygen mask off.
The Johnstone clan showed up today and we are so glad. Amos hasn’t been too responsive today but when he woke up to Casey’s face he said “holy crap!”
Tracy’s kids also drove all night to be here today and it is fun to see them. Tracy is such a calming influence on everyone.
Dean is still doing an amazing job keeping his boy going. He also helped me last night when Porter got lost driving around and ran out of phone battery. He finally asked directions after about an hour and found his way.
Our ward continues to bring meals and cards and love and support. The stake president asked us to have a special fast for Amos tomorrow and I look forward to the needed blessings that will come from that.
Evie Clair is getting ready for the big show and I’m so excited for her. She had to catch up on some “on set” school today. I can’t show any of the exciting photos like sets or wardrobe so a school picture with Darci and Merrick will have to do. It looks like they got photobombed by Miss Blakely.
Daddy is getting his snuggles from his girls right now since they told him he would have to keep his distance from everyone for a while after his Y90 procedure on Tuesday. He will literally be poisonous.
Amos only brought ibuprofen to work with him today and that was a mistake. He got a call from the surgeon’s office this morning telling him he could only take the oxycodone not the ibuprofen he had. They don’t want his blood too thin for the surgery on Tuesday. He can’t take narcotics at work so he went through the rest of the day on nothing. It was difficult but he made it through and is now feeling much better with the oxycodone, his chair and movie night with his girls. We are watching SING!
Evelyn is healing well but her cyst was on her right wrist so it is really difficult for her to do essays and papers without someone typing for her. She was especially happy to get her work done this week and make it to the weekend.
Amos was feeling bad about not being able to go on the Father and Son’s campout tonight but Porter has to work tomorrow so it worked out ok.
We had several more join the family fast today and Amos is holding on. Thank you to those who went without meals on his behalf. There is power in fasting and prayer and we feel it.
Sitting with my nephew, Josh, and his family tonight watching the First Presidency Christmas Devotional. They brought us yummy dinner and good company. Thank you Jandi!
I love Elder Eyring and the Spirit he radiates. What a beautiful devotional to help us focus on the Savior this season.
We enjoyed several uplifting church meetings today and I loved that my dad shared his testimony of Christ with my children in sacrament meeting. He was also here to help set Evelyn apart for her calling as Beehive President.
Today was the first day Blakely had the experience of fasting. We don’t encourage our children to fast until they are 8 years old. I asked her late in the day if it was hard to fast for so long. She said “Yes, but Jesus fasted for 40 days so I can handle two meals.” I love that girl.
Our hearts are full today as we return from church after feeling so much love from our ward family. I can’t even explain how special it was. About half of our ward members held a special fast for Bishop Abplanalp today. We then gathered in the overflow and knelt together as his first couselor, Brother Elwood, offered an incredible and humble prayer to consecrate our collective fasting to Amos and his healing and comfort and the spiritual growth and unity of our ward family.
Amos got up early this morning to make oatmeal chocolate chip cookies for the ward members who fasted for him. We are both overwhelmed with the continued love and support. Feeling that people serve us because they love us fills us with a deep sense of gratitude and love for them.
My sweet friend Rebecca spoke today about when the Savior washed the feet of His disciples and were told if they didn’t allow Him to wash their feet they would have no part with Him. She said it would be like if President Monson came to have dinner at your house then insisted on allowing him to wash your dishes if you wanted to remain a member of the church! That would be very difficult for me. Learning to accept service from our ward members has been difficult at times, but “having part with them” or being united with them in love and service has made it worth it. Service is fertile ground for charity and spiritual growth. What a beautiful gospel principle that we have learned to be true. When wondering what plan our Father in Heaven has in all this, I often think of our ward family and the lessons we have learned from them already.
We want also to let our extended family know of our love and appreciation for them. We missed seeing my family today. My sweet niece McKenna gave her farewell talk and we were so sad that her ward time is the same as ours. I knew my family would understand our absence. I might be biased but you can’t really find better siblings than mine. <3 My sister invited Amos to come help set Sister Morris apart for her mission this week and he is so excited and honored to be there for that.
We missed going through the temple with my niece, Carlie, so we are glad we will make it to her ward for her farewell talk in two weeks assuming Amos’s new cancer regiment will be barable enough for him to function.