Amos started on his new chemo regiment today called FOLFIRI. This one includes the drugs:
- FOL – Folinic acid (also called leucovorin, calcium folinate or FA)
- F – Fluorouracil (also called 5FU)
- IRI – Irinotecan (Campto)
Before the chemo, he got acupuncture for the first time. He was kind of nervous about it but it really relaxed him after the needles were in all over his hands, legs, ears and feet. The acupuncture should help with his neuropathy and back pain. He also got some seeds planted in his ear that will help with headaches and back pain.
Within 5 minutes of them starting the chemo, his voiced dropped two octaves. That was kind of funny. About a half hour into the infusion they had to stop it because he got light-headed, dizzy, nauseous and had some vision problems.
When they started it back up he had to go to the bathroom. They had me go with him for safety. He told me there that he is dissapointed because the FOLFIRI makes him feel so much weaker than the FOLFOX.
We got him home and he said he can feel his stomach starting to get very upset. He has lost his appetite and is really tired. Reaction from the FOLFOX usually took a few days to kick in but the FOLFIRI seems to have hit him right away.
I realized at the last minute that not only had I agreed to puppysit today but my kids also had a half day! My sister and my Releif Society president saved me. Phoebe took care of the puppies, Sister Elwood took care of dinner and her daughter took care of the kids. Sister Ketcher got here early and got the kiddos to school before serving at the temple today. Somehow we are taken care of every single day with what we need and I am continually amazed. Thanks President Stoddard for picking up Blakely from JuJitsu. I also want to thank Amos’s colleagues at the prison who gave us a Fry’s gift card and some kind hand-written sentiments.
While Amos and I sat at the cancer center for 8 hours today we got some insurance decisions made. He has open enrollment for us to renew our medical insurance through his work. We planned to upgrade our medical plan to help with costs we know we will have in the coming year. Keeping our same medical plan would have raised our premiums by 50% so we decided to downgrade our medical coverage to a lower plan and put a large amount into a Health Savings Account instead. I don’t know how anyone affords medical insurance anymore.
Amos and his oncologists had planned for him to return Saturday to get his chemo pump off, but the nurses said it would be dangerous for the chemo to sit in his port overnight with the machine off so he will be racing to the hospital after work Friday before they close. I’m not sure if that will work but we’ll see. I may need to pick him up from work and take him if his current symptoms continue. He was not able to drive home today.
Current Cancer Marker – 11.5
Two weeks off did some damage and we desperately need to get that number down.