Amos relished his day with his family yesterday but last night and today hit him hard. He was up most of the night trying to keep pain, pressure and vomiting under control. I was up with him and it was probably the most difficult night of my life.
This morning he said a tearful goodbye to his dad and Connie who he will miss dearly. More tears came as he said goodbye to the rest of his family throughout the day and to Tom’s family this evening.
I was thinking about how this would be if it was my little brother who was suffering so far away. I can imagine how difficult this is for his family members.
Today his energy was drained and he couldn’t make it to the Tucson Temple dedication despite his great desire to attend. He signed temporary temple recommends for his sweet little girls and struggled the rest of the day just to survive.
Tom and Paige took our kids and came home to tell us about how wonderful it was.
I stayed home and trained Phoebe on all the procedures for Amos. She will be draining him, administering his TPN and keeping track of his medications while I’m in Los Angeles with Evie for America’s Got Talent. I’m so thankful for my sisters.
Leaving him right now is so difficult for me and Evie but I have renewed hope today that despite all indications that this is the end for him, it isn’t.
He will get through this and solutions will come through promptings of the Holy Ghost and the help of the medical professionals who have charge over his care. I know it.
I have some people to thank today. First is his brother, Tom, who literally caught Amos’s potential fall in the bathroom.
Robyn Maloy for the wonderful and timely dinner tonight. She had no idea how many people were here and she happened to bring the exact number of servings we needed.
I also want to thank my beautiful friends Ezra and Tiffany who brought treats. I hope they know how much we treasure them.
Thank you to Ken for not only letting me steal Phoebe for the week but also for bringing out the truck for Porter to use until we can figure out what is wrong with his car.
Thank you again to Michelle Hobson who added some length to Porter’s suit and some breathing room to some of my clothes for the live show.
The things we are going through are so heart wrenching but we have never felt alone. We have been bless and strengthened every day. All you have to do is read through any given day of our journey to know. God is good. He is in charge. His Son has suffered all things and knows what we need to help us through the storms we face.