Thank you for the many, many prayers. Your concern for our family is incredible. I believe there is strength in numbers and there are so many faithful people in our lives.
Amos had a painful night and is in pain again now. His brother, Tom, stayed with him at the hospital. They recently took Amos off the pain pump so getting meds right was a struggle. Tom went back home today. He has been such a great help for us and I know Amos loves his brother.
The hospital is pushing for Amos to be released to a hospice facility which we have decided is not an option for us. Our wonderful home care company, Aegis, stepped in and will take care of him when he is able to transfer home. Thank you Ben and Margene.
There was a moment today when I was on the phone with Amos and Dr. Kundranda. We were talking about TPN then the doctor seemed to have a thought about something else. He said he was going to check some scans with the help of Dr. Lanauze and get back to us. We love Dr. Lanauze and hope they will come up with a brilliant plan together.
Amos’s liver tests are not showing improvement yet so he decided to try another night without the TPN even though he really needs nutrition.
They took the catheter out of his stomach today since no more fluid is coming from that section. Scans showed no fluid on his lungs so let’s end with that bit of good news.
One of the producers for America’s Got Talent went through cancer herself. She is now healthy and I sense such a depth in her soul. She is always concerned about Amos as is everyone here. She talked to me today about how important it is to stay in the light because the pain and darkness of cancer can take over if you let it.